#LTSAT Support group | Never been able to smell

This #LTSAT Support Group is for people who have never been able to smell and those who support them.

This online event, hosted by Fifth Sense & Fifth Sense volunteers, is for people who have never been able to smell because they were born without a sense of smell or have no memory of ever being able to smell as a child. 

Some people are born without the ability to smell and are often totally unaware of this until after they start school when they begin to interact independently of their families. Others might believe they were born without a sense of smell, but they may have lost their sense of smell in early childhood and so don't have any smell memories. Medics refer to the total inability to smell from birth as congenital anosmia and to later loss of smell as acquired anosmia. 

This support group will provide an open, supportive and relaxed environment to learn more and share your thoughts and feelings about living without ever having had a sense of smell. You are welcome to join this support group regardless of whether you, or the person you are supporting, have a diagnosis. 

If you are the parent or carer of a child who has been recently diagnosed with congenital anosmia, or who you believe may have congenital anosmia, you are welcome to join us.  Many parents find this a helpful way to gain a deeper understanding of what their child is experiencing and how they can help.

Please note: We also host events for people who have had a sense of smell and have lost it, and for those who can smell but who are experiencing smell distortions.  If you are unsure whether or not this is the right event for you, please watch these short videos on our YouTube channel: 

Professor Carl Philpott explains Congenital Anosmia.

Prof Carl Philpott explains 'The Osmias'.

Before booking your place, please read the information below about how we will collect and use your personal data to communicate with you about this event. 

How to join on the day

Simply click the 'Join Event' button in the Eventcube e-ticket email or the Zoom link in the reminder email from Fifth Sense. You can use either link to join the event.

Please do this at least 5 minutes before the event start time, ready for a prompt start.  Thank you.

How to contact us if you have any questions or difficulties with booking your place, or if you book and can no longer attend the event. 

How we will collect and use your personal data to communicate with you about this event

Fifth Sense respects your privacy and we are committed to protecting your personal information. We collect and process data when you register online for our events or email us with queries, suggestions or feedback.

When you book tickets for a Fifth Sense event through Eventcube we will collect the following personal data: your name and email address. This is how we will use your personal data when you book tickets for a Fifth Sense event through Eventcube:

• On booking, you will receive your e-ticket by email from Eventcube. This will contain a 'Join Event' button. To do this, Eventcube will hold your name, address and other personal data in their database, as outlined in their Privacy Policy. As a third party supplier, Eventcube are responsible for respecting the security of your personal data and treating it in accordance with the law.
• Fifth Sense will use your name and email address to communicate with you about the event, for example, to send you a reminder email before the event; to keep you informed about any changes to the event (if the event is cancelled or rearranged); or to send a follow-up email about the event. These emails will be sent from info@fifthsense.org.uk.

We will respect your personal data and to treat it in accordance with the law.  We will only use this personal data for specified purposes and in accordance with our Privacy Policy. IF YOU DO NOT CONSENT TO FIFTH SENSE USING YOUR PERSONAL DATA FOR THIS PURPOSE, PLEASE CONTACT US BY EMAIL.

As a small UK charity, we need to find times that work for most UK members and volunteers. We welcome people from around the world. If you are outside the UK please check and confirm the start time in your own time zone.